What You Should Know
A diagnosis of Legg-Calvé-Perthes syndrome can be overwhelming, but the journey doesn't have to be -- especially when properly informed about the condition. These resources will help one be armed with the strongest weapon against Perthes: knowledge.
PARENTS of children with perthes
When a child is diagnosed with Perthes disease, it is perhaps scarier for the parent than it is the child. While the condition is indeed a serious one, fears can be eased by getting familiar with what exactly to watch out for and expect -- and by getting familiar with other parents and families coping with, navigating, and surviving the same situation.
adults with perthes
Every adult with Perthes was once a Perthes Kid. You understand more than anyone on how the challenges of this disease not only reshapes your hip, but also helps shape your life. Again, Legg-Calvé-Perthes disease is not life threatening, but it is life altering. Children faced with the limitations and patience needed to progress with Perthes, usually turn out to be good, outstanding adults, that can go on to do amazing things, despite their earlier condition.
PKF encourages any adult who had Perthes as a child, to give back and help make a difference for the kids going through Perthes right now. Please consider sharing your story in one of our social media groups, making a donation, or volunteering at one of our camps. Most adults with Perthes have never met anyone else with Perthes, so volunteering at Camp Perthes is not only inspirational to the kids, but it can also be very emotional and therapeutic for the adult. To learn more about volunteering click here.
perthes doctors, TREATMENTS & research
While education and mental preparation are important, the ultimate key to living with and surviving Perthes disease is receiving the proper treatment from a medical specialist. Learn more about the journey of every Perthes patient over the years and that of the condition itself since its initial discovery.