Online Support Groups

As with confronting any formidable foe, strength in facing Perthes disease comes in numbers and plenty of good information. Connect with other families affected by the disease within our online support community, where you can learn more about Perthes, ask questions, post stories and photos, get tips and recommendations, and most of all...make new friends.

Other helpful support groups on Facebook:

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We created the above #PerthesAwareness post for Facebook in recognition of Rare Disease Day, a while back. The poster was shared over 2,000 times, in over 15 different countries! We're glad to have brought more attention to this rare disease of Legg-Calve-Perthes, even for just a little while. We plan to do even more in 2018, for Rare Disease Day (February 28) and beyond. #ShareIfYouCare